6 August 2019
UK’s first vision and hearing survey aims to capture vital data on UK issues
A lack of accurate data is contributing to a £58billion bill for vision and hearing loss in the UK, according to a report published today that calls on the Government to support the first ever national survey of the UK population’s sensory needs.
It is estimated that around 2 million people in the UK are affected by partial sight loss, and this is expected to rise to 2.4 million by 2024. The number affected by hearing loss is estimated at 11 million, and this is also rising.
These issues cost the UK economy £58billion in total every year. This takes into account, medical costs, for example falls and fractures caused by visual impairment, an increased risk of dementia due to hearing loss, service costs, and reduced employment. Around 50 per cent of all sight loss is believed to be preventable.
Researchers and charities have now come together to campaign for the first ever UK National Eye-health and Hearing Study (UKNEHS). The data generated by a detailed survey will help cut the cost to the economy and better inform policy makers and service providers, with a focus on prevention.
Professor Sir Michael Rawlins, Chair of the Executive Board of the UKNEHS said “The UK has not invested effectively in collecting population data for vision and hearing loss. The UKNEHS is of vital importance to current and future generations if we are serious about providing quality, evidence-based services in these areas.”
The case for investment, published today by Vision UK, which works with organisations in the eye health and sight loss sector, outlines the details of the study. It would see 25,000 participants undergo an eye and hearing examination and complete a standardised general questionnaire.
Lord Colin Low, co-chair of the All Party Parliamentary Group on Eye Health and Visual Impairment, stated: “If the UK is serious about reducing the levels of preventable visual impairment and hearing loss, then we must have the data that the UKNEHS will provide.
“If we don’t fund this kind of research we are saying that we accept that people living in the UK will lose their vision and hearing due to preventable causes, and that it is OK for them to live with hearing and vision loss that is treatable.”
The study will determine the prevalence and causes of vision impairment, blindness and hearing loss in the UK population aged 50 and over.
The study will also measure the detection and treatment coverage rate of major eye diseases and associated conditions, such as diabetes, in order to understand the effectiveness of current services.
Professor Rupert Bourne of Anglia Ruskin University (ARU), Chief Investigator of the UKNEHS, said: “Growing demand from an ageing population and increasing incidence of long-term conditions will exacerbate existing issues in the system. However, policy makers are completely in the dark about the scale of the problem because no comprehensive survey has ever been done in this country.
“Other countries across the world regularly survey their populations, allowing them to make informed decisions about care and treatment, identify trends and take action.
“We know the costs – to the NHS and the UK economy – of these issues runs into the tens of billions of pounds every year, so it is imperative that we understand more about our eye and hearing health, so that we can better address people’s needs and reduce costs.”
The UKNEHS brings together a number of partners including ARU, The Thomas Pocklington Trust, The Royal College of Ophthalmologists and the College of Optometrists.
The report has been submitted to the UK Government. The UKNEHS needs the public to ask their MPs to support the project – e-mail contact@UKNEHS.org.uk to find out how.
Notes to Editors
ARU is an innovative global university, brimming with ambition. Students from 177 countries gain qualifications with us in four continents. Students, academics, businesses and partners all benefit from our outstanding facilities; we’ve invested £100 million over the last five years and plan to invest a further £91 million over the next five years.
ARU’s Research Institutes and four faculties bridge scientific, technical and creative fields. We deliver impactful research which tackles pressing issues and makes a real difference, from saving lives to conserving water. Our academic excellence has been recognised by the UK’s Higher Education funding bodies, with 12 areas classed as generating world-leading research.
We are ranked in the world’s top 350 institutions in the 2019 Times Higher Education World University Rankings, and in 2016 we featured in a list of the 20 “rising stars” in global Higher Education compiled by strategy consultants Firetail.
43rd Metro Athletics Open 2019
22 June 2019
Date: Sat 22nd June 2019 Venue: Mile End Stadium, London, E14 7TW
Click here for a Metro Games Entry Form 2019
Hosted by London Borough of Tower Hamlets and GLL, supported by Carmen Butler Charities Charitable Trust and the Roden Family Foundation.
Metro Blind Sport – Welcomes athletes of all ages and experience throughout the UK to join us in our annual competition’s ‘43rd year!
The morning ‘Come and Try Coaching Session’ will once again provide those new to the sport a brilliant opportunity to try out running, jumping and throwing in a fun and relaxed atmosphere, supported by qualified coaches. If you haven’t tried an event before and want to compete in the afternoon, or are looking to improve your performance this is the place for you.
The 2019 programme will be run under UKA/IBSA rules and is open to males and females of all ages. The athletics competitions are principally for registered blind and partially sighted people.
Every competitor will receive a free t-shirt along with either a medal and/or performance certificate. Free packed lunches will be provided for all competitors, coaches, officials and volunteers. *Guide Runners may be arranged with advance notice, you will need to provide an estimate of your track times.
Guest competitors are welcome but no medals or certificates can be awarded.
Entry form and Information
- Entry:FREE including packed lunch, t-shirt, medals/performance certificate
- Please complete and return the form attached below, by email to firstname.lastname@example.org
- Download Entry Form here:blindsport.uk/AthleticsOpen2019
- If you would like help to complete the entry form then please telephone Charlie on 07956292046
- The closing date for Entries is Saturday 01st June 2019, if you require Accommodation the closing date is 31st March 2019
Come and Try Session starts 10.00am – 11.30am, open to all ages, an ideal opportunity to access specialist coaching in track and field disciplines.
Competition starts 12.00 noon, listed below are all events grouped under the relevant age ranges. Results will be uploaded to Power of 10 as soon as possible.
Event closes after final Medal Ceremony – 5.00pm
- Under 12 (Age at 01.01.2019) – Boys and Girls (4 events only) 60m, 100m, Standing Long Jump, Ball Throw, For B1 athletes only)
- Under 14 (Age at 01.01.2019) – Boys and Girls (4 events only) 100m, 800m, Long Jump, High Jump, Shot, Discus, Javelin, (For B1 athletes only – called 60m),
- Under 17(Age at 01.01.2019) – Boys and Girls (4 events only)100m, 800m, Long Jump, High Jump, Shot, Discus, Javelin, (For B1 athletes only – called 60m),
- Senior Ladies and Men (18 – 34)100m, 200m, 400m, 800m, 1500m, 5000m, Long Jump, Triple Jump, High Jump, Shot, Discus, Javelin
- Vets Ladies and Men (Over 35) 100m, 800m, 5000m, Long Jump, Shot
The track (Mile End Stadium) and the accommodation (Queen Mary University) are within walking distance of Mile End Tube Station (Central and District line).
- Athletes aged Under 12, 14 or 17 may take part in up to four individual events in any one day.
- Senior Athletes may take part in a maximum of five events. These will consist of either 3 track and 2 field, or 2 track and 3 field on the day.
- Electronic timing will be used on all track races.
- B3 and B4 athletes are reminded that competition rules do not allow any concessions to assist performance. (No Guide Runners)
- ALL B1 ATHLETES MUST PROVIDE AND USE THEIR OWN SHADES. Time permitting there will be a Fun Relay for all competitors during the afternoon including parents and coaches.
- Photos: A gallery of high resolution photos will be available in the week after this event. We will share a link with you where you can view and select, following a donation of your choosing, the photos you would like to keep. Please take note of the number/s and send these to email@example.com. Saul will setup an individual WeTransfer link (available for 7 days only) for you to download the Digital High Res Photo/s you have chosen to your pc. Photo requests are on a first come, first serve basis only and will be processed when time allows. Donations can be made via the website donate button http://bit.ly/MBSDonatePage
In order for as many events as possible to take place, it may be necessary to merge sight categories thereby ensuring the maximum number of individual ‘event requests’ are met. We recognise this could lead to a miss-match in functional sight levels, however our aim with the ‘Metro Athletics Open’ is to always offer the widest range of opportunities for athletes to compete. We view this as a preferable option to cancelling events with low numbers.
The closing date for Entries is Saturday 01st June 2019, if you require Accommodation the closing date is 31st March 2019.
Accommodation: This will be available on Friday and Saturday night (21st and 22nd) at the aforementioned Queen Mary University of London. Please note there is a further reduction for those under the age of 18. A separate form is available for accommodation requests, please email firstname.lastname@example.org
This Easter Sunday the Wilberforce Trust are hosting an Easter Egg Hunt for children with sight loss and their siblings.
Enjoy a fun filled day with your family. Come along and find the eggs, don’t forget to bring your basket.
The event is free, though charitable donations are welcome.
For more information and to book a place please contact Samantha Scholey – email@example.com
You have the right to find out if an organisation is using or storing your personal data. This is called the right of access. You exercise this right by asking for a copy of the data, which is commonly known as making a ‘subject access request’.
How to access your data
You can make a subject access request to find out what data is held and how it is used. You may make a subject access request before exercising your other
You can make a subject access request verbally or in writing. If you make your request verbally, we recommend you follow it up in writing to provide a clear trail of correspondence. It will also provide clear evidence of your actions.
To exercise your right of access, follow these steps:
- Identify where to send your request.
- Think about what personal data you want to access.
- Make your request directly to the organisation.
- State clearly what you want.
You might not want all the personal data that the organisation holds about you. It may respond more quickly if you explain this and identify the specific data you want.
When making a subject access request, include the following information:
- Your name and contact details.
- Any information used by the organisation to identify or distinguish you from other people with the same name (account numbers etc).
- Any details or relevant dates that will help it identify what you want.
For example, you may want to ask for:
- your personnel file
- emails between ‘person A’ and ‘person B’ (say from 1 June 2018 to 1 Sept 2018)
- CCTV camera data situated at ‘location E’ on, say, 23 May 2017 from 11am to 5pm records detailing the transfer of your data to a third party.
[Your full address]
[Name and address of the organisation]
Dear Sir or Madam
Subject access request
[Your full name and address and any other details to help identify you and the data you want.]
Please supply the data about me that I am entitled to under data protection law relating to: [give specific details of the data you want, for example:
- my personnel file
- emails between ‘person A’ and ‘person B’ (from 1 June 2017 to 1 Sept 2017)
- my medical records (between 2014 and 2017) held by ‘Dr C’ at ‘hospital D’
- CCTV camera situated at (‘location E’) on 23 May 2017 between 11am and 5pm
- copies of statements (between 2013 and 2017) held in account number xxxxx.]
If you need any more data from me, or a fee, please let me know as soon as possible. It may be helpful for you to know that data protection law requires you to respond to a request for data within one calendar month.
If you do not normally deal with these requests, please pass this letter to your DataProtection Officer, or relevant staff member. If you need advice on dealing with this request, the Information Commissioner’s Office can assist you. Its website is ico.org.uk or it can be contacted on 0303 123 1113.
- Keep a copy of your request.
- Keep any proof of postage or delivery.
When to re-submit a request
You can ask an organisation for access more than once. However, it may be able to refuse access if your request is, as the law says, ‘manifestly unfounded or excessive’.
If you are thinking of resubmitting a request, you should think about whether:
- it is likely that your data has changed since your last request
- enough time has passed for it to be reasonable to request an update on
how your data is being used, or
- the organisation has changed its activities or processes recently.
What to do if the organisation does not respond or you are dissatisfied with the outcome
If you are unhappy with how the organisation has handled your request, you should first make a complaint to it.
Having done so, if you remain dissatisfied you can make a complaint to the ICO.
You can also seek to enforce your rights through the courts. If you decide to do this, we strongly advise that you seek independent legal advice first.
What organisations should do
If an organisation reasonably needs more information to help it find your data or identify you, it has to ask you for the information it needs. It can then wait until it has all the necessary information before dealing with your request.
When it responds to your request, the organisation should provide you with a copy of your data. It may do this electronically. If you need your data in another format, you must ask if this is possible.
- You are also entitled to be told the following things:
- What it is using your data for.
- Who it is sharing your data with.
- How long it will store your data, and how it made this decision.
- Information on your rights to challenge the accuracy of your data, to have it deleted, or to object to its use.
- Your right to complain to the ICO.
- Information on where your data came from.
- Whether your data is used for profiling or automated decision making and how it is doing this.
- If it has transferred your data to a third country or an international organisation, what security measures it took..
When can the organisation say no?
An organisation may refuse your subject access request if your data includes information about another individual, except where:
- the other individual has agreed to the disclosure, or
- it is reasonable to provide you with this information without the other individual’s consent.
In deciding this, the organisation will have to balance your right to access your data against the other individual’s rights regarding their own information.
The organisation can also refuse your request if it is ‘manifestly unfounded or excessive’.
In any case the organisation will need to tell you and justify its decision. It should also let you know about your right to complain to the ICO, or through the
How long should the organisation take?
An organisation has one month to respond to your request. In certain circumstances it may need extra time to consider your request and can take up to an extra two months. If it is going to do this, it should let you know within one month that it needs more time and why. For more on this, see our guidance on Time Limits.
Can the organisation charge a fee for this?
A copy of your personal data should be provided free. An organisation may charge for additional copies. It can only charge a fee if it thinks the request is ‘manifestly unfounded or excessive’. If so, it may ask for a reasonable fee for administrative costs associated with the request.
Leeds – Interpreting Workshop with Clive Mason
Part 1: Thinking Visually – Saturday, 19th January 2019.
Part 2: Visual Flair – Sunday, 20th January 2019
Venue: Leeds Society for the Deaf and Blind People, The Centre Street, Leeds, LS9 7DP
Trainer: Clive Mason
Suitable for: TSLI and RSLI – whether Constructed Action and Dialogue are new to you, or you would like a refresher.
Cost: £120 per day – CPD 6 hours or
Special Price: £210 for 2 days – CPD 12 hours
Part 1: Thinking Visually: A Constructed Action Constructed Dialogue
If a picture paints a thousand words then interpreters are artists!
Conveying complex concepts in BSL can be a challenge and it can be hard to manage the unwanted influence of English when interpreting.
Part 2: Visual Flair: Mastering Constructed Action Constructed Dialogue
A follow up workshop for interpreters who have attended “Thinking Visually: A CA and CD Workshop”.
Say goodbye to words and immerse yourself in a visual world.
For further details and a registration form to book, please email: firstname.lastname@example.org